Research Data Management @ Queen's

The following recommended resources can be of assistance when you need to:

• Understand your legal and ethical obligations, and secure your data accordingly.

Research Ethics

• Health Sciences and Affiliated Teaching Hospitals Research Ethics Board (HSREB)
• General Research Ethics Board (GREB)

Information Technology Services (ITS)

• Security services and resources - includes services for encryption, digital certificates, security assessment, and secure electronic destruction.
• Policies and standards - guidelines to ensure a a safe information community.
• Data classification - identifying sensitivity of data.

General

• Government of Canada: Safeguarding your Research
  A helpful resource for understanding the risks involved with research and innovation.
• Sensitive Data Toolkit for Researchers Part 1: Glossary of Terms for Sensitive Data used for Research Purposes

Ethical Conduct for Research Involving Humans

• Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans – TCPS 2

Respecting Indigenous Rights

• First Nations Information Governance Centre
• CARE Principles for Indigenous Data Governance
• TCPS 2 – Chapter 9: Research Involving the First Nations, Inuit and Métis Peoples of Canada

Guidance for Seeking Consent to Share Data

• Sensitive Data Toolkit for Researchers Part 3: Research Data Management Language for Informed Consent
• ICPSR: Recommended Informed Consent Language for Data Sharing

Assess the Risk of Sharing your Data

• Sensitive Data Toolkit for Researchers Part 2: Human Participant Research Data Risk Matrix

Anonymization and De-Identification Resources

• Information and Privacy Commissioner of Ontario: De-identification Guidelines for Structured Data